My sister, Tina Mote, will be running in the 2018 Bank of America Chicago Marathon in Chicago, Illinois on Sunday, October 7, 2018.
For this marathon, Tina decided to raise money for something that is close and dear to her heart – The Arthritis Foundation. Unfortunately myself and another close friend have rheumatoid arthritis. Tina decided to run the marathon in our honor in support of raising money for a great cause. In fact, below is a note of why she picked the Arthritis Foundation:
“Both my sister and my close friend have rheumatoid arthritis (RA) and through them I have become passionate about wanting to do something to contribute towards a cure or better ways to treat RA. In addition, I’d like to bring awareness to RA and the herculean effort people afflicted with RA have to go through on a daily basis.
I’ve seen both my sister and my friend deal with flare-ups and with medicine side effects and I’ve seen them be immune compromised. My friend, who is only in her early 30s, is currently having to fight through some really tough side effects of Rituxan (a chemo treatment for RA); she’s undergoing this treatment because other medicines have not been effective for controlling her RA. The side effects at times have been life threatening.”
The following passage is from my friend’s blog. It speaks volumes to what she has to endure.
“Had a good learning experience today, for the first time something was blamed on me because of my ‘being sick.’ I realized that when someone can use the smallest thing against you (and being sick is no small thing) then you have entered into a world where you feel like you have to be ‘Great,’ ‘Doing good’ all time because if you don’t….someone will say ‘blank didn’t happen because YOU were ‘sick’.’
I’ll say I expect better, the world needs to understand the world of those people who are chronically ill! Why should we have to live a lie? Why should we push ourselves so hard to earn an Oscar every day for our performance? Why can’t we be honest about how we feel? Why?
….because that will be the weapon someone will use against us. And so we can’t, so instead we lie, we push ourselves, we never show the tears of pain and fatigue…..instead we make ourselves smile, laugh, and act like we are normal….because if we didn’t someone will say ‘because you are sick’.